meniere's disease

Hey Kaz your MRI will be normal . they look for Acoustic Neuromas on the hearing nerve which can cause your symptoms, but are very very rare .. as ya know i had the same as you for many years
so dont worry you will be fine .. did they give you ear protection while you were inside the machine ? .. Kaz its great that you still have a fantastic sense of humour ..
im proud of you,.. so keep up the good work .. we will get you right one day for sure
your pal Micky

 

i remembered that you told me to bring earplugs so i did ( they did offer me some though)
got to have a sense of humour Micky or this would drive us crazy

thanks for your sage advice as always Micky

 

is facing the reality that this condition is here for the long haul i have cut my work load by over half i have completely changed diet and lifestyle , i cant do any bending so the gardening and allotments are going to have to go i cant play with the children the same as before and to be honest i cant keep up with it sorry i dont post much any more i dont feel i have much to contribute

 

Aw Kaz....so sorry to hear this.....Is there a chance you could have raised beds in your garden to save you bending?.....You've GOT to keep posting

 

Kaz, you haven't got much to contribute eh? Remember this from a few weeks ago:

I do. I was at my wits end. You came up with the sound advice that may well have saved my sanity, and generally made my household a more peaceful and happy place.

I'm sorry to read that you're still unwell, and hope you find something that works for you soon. I'm sorry I know nothing about meniere's disease so I can't offer any useful words on the subject, but please don't think you've got nowt to contribute here.

 

Hiya Kaz .. ive not been here for some time and am sorry you are still not good are your symptoms the same or any better from when we last spoke which was some time ago ? .. i know you are still struggling .. i was in the same position as you and my Meniers lasted for 2 and a half years ... during that time i did regular exercises every day to re train my brain .. if you like i could send you details of what i was doing .. it dident happen over night though Kaz as its a bit of a long drawn out process .. but i honestly belive these exercises speeded up my recovery .. i thought i would never recover but i did eventually .. Meniers can burn itself out over a period of time , but you may need some extra help .. i take it your MRI was normal ? .... i wonder if its BBPV you have .. ive given this some thought and it just may be .. clutching at straws here but well worth an investigation .. let me know how you are Kaz and NO going walk about OK ... you stay around with us here at Gardeners World .. thinking of you .. Micky
Benign paroxysmal positional vertigo - Wikipedia, the free ...

 

thanks all for kind words I'm hoping you know i never actually read these comments until now

I am Not feeling sorry for my self anymore,

after getting No answers or progress on the nhs I paid to go private and got some answers and treatment, I have had a full Labrynthectomy ( full distruction of the but working ear) , thankfully this has removed all the symptoms of MD except for the tinitus, but that i can cope with, i am now completely deaf on my right side and i am happy to be so, thank you all for your support and while i was not on form

 

I'm glad you're back Sorry to read tinitus, but I'm glad you're back on form.

 

I know you still have the tinitus to deal with but it must be a massive relief to be rid of the other awful symptoms of MD thank goodness that's over with now

 

the tinnitus i have had for over 20 years so i would probably miss it if it was to suddenly stop Loli

 

i could cope with Fb but i couldn't cope with the pages on here it would just trigger attacks with both migraines and nystagmus episodes, it was also a constant reminder of what i just couldnt do any more, i just got so depressed, it was nice to keep in touch via FB, i certainly learnt who my fair weather friend are both in the real world and the cyber one lol

 

Glad to hear of the improvement Kaz, like mine your Tinnitus is bearable but I have forgotten what complete silence is.